Sickle cell disease and thalassemia are genetic conditions that affect hemoglobin in the blood, and are found in populations globally.
WISSH (Worldwide Initiative on Social Studies in Hemoglobinopathies) is an international network of researchers applying rigorous social science research to the world’s leading inherited conditions, sickle cell disease and thalassemia.
The mission of WISSH is to advance social studies in the service of the global sickle cell disease and thalassemia communities.
In 2011 GRID researchers co-founded WISSH with other colleagues to conduct, promote, and support social and interdisciplinary hemoglobinopathies research globally. WISSH also aims to engage healthcare providers and people living with hemglobinopathies in efforts to improve the lives of children and adults with these conditions. Advocacy and capacity building are key elements of WISSH.